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Anyone out there with Erythromelalgia?
Autoimmune Diseases | Last Active: 5 days ago | Replies (312)Comment receiving replies
@johnbishop Hello again John.. I have not been online with you for a few years.. but am now back with my "progress (or lack of) report"..I am still troubled with hot burning feet sometimes during the night.. but it is now neuropathy with numbness..My doctor at that time diagnosed me with diabetes and prescribed Metformin, which I still take daily.. My AC1 has never been over 6 since that time! After all this time, I don't believe I ever had diabetes..
In reading about causes of neuropathy I across a reference to Charcot Marie Tooth syndrome as a gene mutation that does cause neuropathy.. I hope you can m
AAAAJOHN.. i GIVE UP.... MY LEFT HQND ON'T BEHve noeYAS...
JUS TOSS GHIS PLEASEEEEEEEE..........
HOTFOOTF
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Hello @hotfooted, It is good to hear from you. So sorry to hear that you are now having painful symptoms with your left hand. There are quite a few members who have posted about Charcot Marie Tooth syndrome if you want to read what others have shared - https://connect.mayoclinic.org/search/. I did see a YouTube video on CMT Exercise Series, Part 6: Hands & Fingers: https://www.youtube.com/watch. I think the one thing that can help us get through the tough days are just to keep moving. I'm reminded of that old saying "motion is lotion". Hoping you have a pain free day.