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@hopeful33250 Hello,
Thank you very much for your feedback and for taking the time to respond. I truly appreciate it.
I live in a smaller country where access to highly specialized doctors is limited, and it is likely that we do not yet have the same level of technology or treatment protocols that are available in your country. Because of this, I am very grateful to be able to connect with you and learn from your experience. It helps me understand whether I am on the right path or if there may be alternative treatment options worth considering.
At the moment, I would also like to ask about the biopsy, as I am receiving two different opinions. One is that a biopsy is necessary to properly determine the aggressiveness of the tumor, while the other suggests that it could potentially be risky if the tumor is punctured. I am not sure what the standard approach is in cases like this, and I would really appreciate hearing how this is typically handled in your experience.
If you are willing to share, I would be very grateful to hear how this was managed in your own case.
Thank you very much again for your time and support.
Replies to "@hopeful33250 Hello, Thank you very much for your feedback and for taking the time to respond...."
@michaela258 I was diagnosed with a stage 4 PNET that spread primarily to my liver in 8/22. I have been living on chemo since. Having any test or treatment comes with a degree of risk. Depending on the biopsy technique used, pancreatic biopsies can have a complication rate between one and four percent. Compared to a lot of tests and treatments, that is a great success rate. To my knowledge, there isn't a better way to confirm a NET diagnosis. Other than a biopsy, what other options were presented to you? For me, having accurate data to determine the best treatment course is critical to the success of any treatment. What other concerns do you have at this point? What are your next steps in your diagnosis and treatment planning?
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@michaela258
I appreciate your response and 1 can understand your concerns regarding whether to have a biopsy or not.. I have had three surgeries for NETs in the upper digestive tract, but not in the pancreas. I hope you will read the posts in the discussion group I mentioned. Perhaps @tomrennie, @pete1962 and @lindabees will post about their treatment protocol.
How are you feeling?