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Anyone able to get rid of stenotrophomonas maltophilia?
MAC & Bronchiectasis | Last Active: Jun 15 7:39am | Replies (14)Comment receiving replies
@smc17 My steno was never treated because it did not make a "regular appearance" in my cultures, it was sporadic and "few." But I was treated with Tobi for P. Auringosa back in 2018. My only side effect was that it took my voice while I was on it. That was after 3 other antibiotics failed.
Have you talked to your pulmonologist about Tobi and whether they would recommend? Have you had a repeat CT scan to see how your lungs look?
Replies to "@smc17 My steno was never treated because it did not make a "regular appearance" in my..."
@sueinmn my Infecticious disease doctor wants me on it for psuedonama aerigenosa. I had an active attack in Jan/ Feb. That I went on picc line of cefipime. She believes I will be having another attack by mid summer. But the tobi is a 30 day on 30 day off forever. I seem to get every dideceffect from any medication. So im not sure. If I lose my voice it seems id be in a difficult way . Especially since she said I may go on it everyday of my life . Im totally confused. How is your psuedonama aerigensa in your lungs since it was back in 2018. ??? Thank you
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@sueinmn do you still have the pseudomonas Sue? I was in the hospital for 2 weeks in March taking IV Zosyn, and haven’t had a sputum test since