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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (591)Comment receiving replies
@janemc
This is great, I'm so glad I found you. It did two things for me,
one: started taking the sun thing a bit more seriously (though I still have a glass of red wine everyday) and
two: I no longer feel alone with the HU and/or ETJAC2. When I start to describe it to my friends their eyes glaze-over. 🙂
Replies to "@janemc This is great, I'm so glad I found you. It did two things for me,..."
@jodyjazz
Yes, or they tell you how you don't really have a serious condition (like they KNOW) because it's not like cancer, and you can just take that HU, after all, they are on cholesterol meds for life, so that 's sort of the same....., like, what's the big deal. Etc.
So, yes, being able to talk about everything related to your disease/condition/experiences without being dismissed is huge. Learning how others managed this that and the other is huge. And no longer feeling alone with it is huge also! Glad you checked in here.
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@jodyjazz
As they say, 90% of people don't care if you have medical problems . . . and the other 10% may be glad.
But on this forum -- we do care and we do help one another!