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Anyone able to get rid of stenotrophomonas maltophilia?
MAC & Bronchiectasis | Last Active: Jun 15 7:39am | Replies (14)Comment receiving replies
@sueinmn I have not had that one . Im 68 grew psuedanoma aerigenosa last year. Had severe attack Jan/ Feb 2026 went on cefipime. Feeling good as if now but my ID doctor wants me to go on tobi inhaled forc30 days on and 30 days off. I seem to get side effects to every medication. And bad side effects. Im not so sure its the right time for me to start it. Im on the fence. Since its related to your steno was there any talk about trying inhaled tobi ?
Replies to "@sueinmn I have not had that one . Im 68 grew psuedanoma aerigenosa last year. Had..."
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@smc17 My steno was never treated because it did not make a "regular appearance" in my cultures, it was sporadic and "few." But I was treated with Tobi for P. Auringosa back in 2018. My only side effect was that it took my voice while I was on it. That was after 3 other antibiotics failed.
Have you talked to your pulmonologist about Tobi and whether they would recommend? Have you had a repeat CT scan to see how your lungs look?