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Anyone prescribed antibiotics for pouchitis?

Posted by janspons @janspons, Apr 25 11:00am

I have been prescribed Vancomycin for my severe pouchitis. I don't see much mentioned about it like Cipro or Flagyl. Wondering about any issues with it? I was on Cipro, Flagyl & azathioprine for as long as I can remember (probably 15 years or so) needless to say I have quite a few of the side affects from that, so I'm just curious on this one. At this point I just want something to get it under control as I have had nocturnal incontinence for about 2-1/2 years. Thanks for any input.

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janspons | @janspons | May 26 9:39am
In reply to @susanf8 "@janspons it does seem concerning you are still having problems after that long on Vancomycin. Does..." + (show)
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@janspons it does seem concerning you are still having problems after that long on Vancomycin. Does your GI feel the inflammation is from CD?

You had mentioned you were going to have a consultation with a colorectal surgeon, is that still your plan?

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@susanf8 eventually I'm thinking that will happen. I'm hoping to get the nocturnal leakage under control or else may have to think seriously about some type of surgery or ileostomy.

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AZ | @equanimous | May 26 4:53pm

I recently was prescribed Rifaximin which is an antibiotic primarily used as maintenance therapy for chronic, antibiotic-dependent pouchitis. I tolerated it well and it cleared up my pouchitis. I was relieved since I had a bad reaction to both Cipro and Flagyl. The medication however is quite expensive.

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