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Anyone have chronic lymphocytic leukemia (CLL)?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (372)Comment receiving replies
Hi @joycelen I completely understand why you said ‘good bye’ to your hematologist. You need to feel comfortable and be able to trust the doctor you’re working with! I’m so sorry you had that feeling of being an annoyance!
I had the similar experience with my PCP who dismissed my incredibly rapidly deteriorating health over a 3 week span. Seeing her weekly, she kept telling me I looked great and to go to Florida. The sunshine would do me good! LOL Well, that ‘lack of sunshine’ look I had was from leukemia and a hemoglobin of 4.7… 🙄 I was barely clinging to life with like a cup of red blood. Needless to say, she’s out of the picture!
Your experience with your PCP sounds like a very amicable and trustworthy partnership. She’ll have your back and if there are noted changes in your labs, she’ll give you the heads up. And it looks like, from a recent comment, that you have found an alternative Hematologist whom your son has seen. It’s nice to know you would have a better option than your previous hematologist if needed.
What was the cause of your son’s elevated red blood count?
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@loribmt Two years in a row his RBCs were elevated. We were not told the first time. The second time he had to go back in and get retested and sure enough they were elevated again. That is when we saw they had also been the year before. His PCP sent him to a hematologist/oncologist because of the possibility of polythemia vera. He tested him thoroughly and did a JAK2 test which was negative. In a short period of time, his blood work was normal. The Hematologist said he thought the blood had been left out on the counter too long before being sent to the lab that the PCP 's practice uses. We were relieved and accepted that explanation. (But two years in a row! ) He does tend to get headaches so when he had a severe one I did not hesitate to take him to the ER. They diagnosed migraines.