@kat260 thank you so much for your precise description of your appointment with this fabulous specialist. I am pretty relieved after knowing that this expert emphasizes the necessity of acting instantly. And from my understanding, it is exactly what I have hoped for. First of all it is so vital to reduce the platelets and HU is the only medication which is capable to do this. And after the successful process of lowering those dangerous thrombos the next step could start. And obviously, she prefers the more modern path of treatment, namely interferon. Has she already defined if she’s gonna use Pegasys or Besremi? Can’t wait to hear her recommendation. And I guess you are absolutely right to do this nasty biopsy. I guess this is the gold standard although I have to admit, I am happy that I could have avoid the procedure yet .

By the way, you kindly inquired about my ongoing treatment . Until now the side effects are pretty low. I only perceive red marks at the point where injection has been administered. However, my other blood numbers are too low and we closely observe this development, otherwise the danger of severe infections will increase. Tomorrow I am gonna have my next appointment and afterwards I know the exact numbers and how to deal with this issue. Hopefully we will be in touch to share our stories. I wish you a good start with HU, pleas have in mind that sun protection is key🏖️your Birgit