What can help with constant pain in back, hips and legs?

Posted by gwj734 @gwj734, May 10 11:14pm

I have scoliosis, osteoporosis, osteoarthritis, a bulging disc and degenerative disc disease. I have had the steroid injections several times. Tried chiropractic over the years. Now they are telling me that surgery is my only option. Rods, clips, pins, etc. This isn't an option for me for a few reasons.
The bottom line is that I am in constant pain. I took gabapentin for quite a while and it helped. I didn't like the side effects and the way it made me feel so I quit taking it.
I am 68 and live alone. My closest family is 500 miles away. Any thoughts or suggestions will be much appreciated.

Interested in more discussions like this? Go to the Bones, Joints & Muscles Support Group.

Profile picture for grannytrucker @grannytrucker

@heyjoe415
Wow, it's funny how we run across information that relates to us on this site! "Getting older isn't for sissies" is my new moto! Your comments are right on point.

I've had two rotator cuff surgeries. In 2017, the right rotator cuff had 3 torn tendons (1 off the bone) and 2 torn muscles. A year of being undiagnosed led to the one off the bone. Moved & got an amazing Orthopedist Surgeon. Will never forget his words after surgery: "I did the best I could!" He was only able to repair the "off the bone" tendon. But I recovered & did therapy. Was then off work for a year & a half, not because of the surgery. In hindsight, it was the best thing that could have happened because that right shoulder NEVER gave me trouble until I injured both rotator cuffs in October of 2025. Meanwhile though, I injured my left rotator cuff using extreme force to turn a wheel in November of 2024. Knew immediately it was my rotator cuff and had surgery & therapy and returned to work in about 10 months total. In October of 2025, I injured both rotator cuffs and both hands using extreme force turning a wheel. Here it is May and I am still having "red flag" pain. Because it was on the job, it has taken me this long to be able to see my surgeon. Will be seeing him in two days to get a diagnosis and hopefully a recommendation.

For me, I have known for years that carefully strengthening my core muscles will help my now osteoporosis ridden and severely degenerated spine, keep me mobile, and keep pain at bay! Personally, I am fearful of ANYTHING that just masks your pain. The injury is still there, and if you're not careful, you run the risk of damaging yourself further.

I'm 75. Took Gabapentin after my last surgery. Almost immediately suffered SEVERE memory loss, realized it was the problem, and quit immediately. Memory went back to normal. As far as meds after surgery, I was taking a humongous amount of pain pills. I have a note pad totally full of every pain pill I took and the time so I wouldn't lose track and take too many.

Other than a ride to and from surgery, I took care of myself at home. However, not all surgeries are the same. For instance, knee replacement would be more difficult, but your insurance should be able to provide some needed necessities like a beside commode and check in on you. Most insurances have some benefits for at home care visits and for Nursing/Rehabilitation Facilities. I totally agree, we do all have to be responsible for our own health. Otherwise, we may not enjoy the consequences!

Jump to this post

Yikes Granny, you have been through a LOT!

Sure sounds like your sciatic nerve is getting pinched, which is a little strange considering your fusion surgery. By all means see your surgeon - I'm sure you'll need a new MRI.

Something is pressing on the sciatic nerve, I think - could be a bulging disc or an arthritic spur. I know that pain, had it on the back of both legs. Haven't had fusion surgery and am trying to avoid.

Glad you liked the quote! You are a very strong person to have to deal with shoulder and knee problems. I admire you.

And FWIW, I never liked gabapentin. I just didn't feel right, like my skin was always tingling.

My last replacement was an anatomical left TSR, August 2026. It took a lot of patience, but at about 10 months post-op I'm doing chest presses and incline pushups again. The pain is all gone, thankfully!

Take care of yourself Granny!

Joe

REPLY
Profile picture for heisenberg34 @heisenberg34

I have constant pain level of an 8-9 in my lower back, buttocks, and back of legs. My pain meds don't seem to be helping. Three years of a pain pump hasn't helped. Recently, what has helped is a small line of THC extract on a piece of chocolate. It takes one to two hours for it to kick in, but my pain is greatly reduced. The main side effect is my feeling like I am am in a disconnected reality. I am still weighing the pros and cons.

Jump to this post

FWIW Heisenburg, I think it's fine to feel a little disconnected from reality now and then. Reality is the number one cause of my pain…….

Thanks for the suggestion. I tried weed under a Dr's care while living in CA. I hadn't smoked weed since the early 70s. I had no idea how concentrated the THC has become. So trying a small dose to start is wise - maybe it's always wise.

Joe

REPLY
Profile picture for heyjoe415 @heyjoe415

FWIW Heisenburg, I think it's fine to feel a little disconnected from reality now and then. Reality is the number one cause of my pain…….

Thanks for the suggestion. I tried weed under a Dr's care while living in CA. I hadn't smoked weed since the early 70s. I had no idea how concentrated the THC has become. So trying a small dose to start is wise - maybe it's always wise.

Joe

Jump to this post

@heyjoe415 Thanks, Smokin' Joe. I am not interested in smoking dope. Gummies or edibles will likely be my choice. You are correct. sometimes being disconnected from reality may not be a bad thing. I am hoping to find a mix of THC and CBD that will give me a little pain relief without the altered reality. Hope you are doing well.

REPLY
Profile picture for heyjoe415 @heyjoe415

Hey there Peachey, fellow lower back sufferer here. And I'm 71. I've had both knees replaced, right hip, left shoulder. Rampant osteoarthritis.

And my lumbar spine is a mess - stenosis, scoliosis, spondylolisthesis, and degenerated discs and arthritis spurs everywhere. Three years ago I committed to getting my weight from 190 to 150 (I'm 5'10"). My weight is now consistently between 151-155, and I'll take that!

I used cardio and cut way down on sugar to achieve this, and I'm a former marathon runner - done in eventually by arthritis. I spin 5x/week for cardio and 2x/week resistance training.

My back surgeon tells me my lumbar spine is being held together by a very strong set of core muscles. That's fine w/me. Replacing a joint is relatively straightforward, with few complications.

But lumbar surgery, including fusion - well I'd really like to avoid that. So glute thrusts and ab exercises are a big part of my weekly routine. And there are many, many ways to strengthen your core that don't take up a lot of time. Stretching the lower back also helps.

Be well, friend.

Joe

Jump to this post

@heyjoe415 I know the core thing has a lot to do with it, I’ve lost so much muscle mass. I use to walk 5-6 miles a day , I tried to keep it goin through treatment and BMT but it gradually go less and less the more the pain set in. I’ve kept my weight down, but my gut now is my most out standing feature. I know I need to work on it and no maybe I can with gabapentin on board. You make me feel like a big o baby now, lol

REPLY
Profile picture for heyjoe415 @heyjoe415

Yikes Granny, you have been through a LOT!

Sure sounds like your sciatic nerve is getting pinched, which is a little strange considering your fusion surgery. By all means see your surgeon - I'm sure you'll need a new MRI.

Something is pressing on the sciatic nerve, I think - could be a bulging disc or an arthritic spur. I know that pain, had it on the back of both legs. Haven't had fusion surgery and am trying to avoid.

Glad you liked the quote! You are a very strong person to have to deal with shoulder and knee problems. I admire you.

And FWIW, I never liked gabapentin. I just didn't feel right, like my skin was always tingling.

My last replacement was an anatomical left TSR, August 2026. It took a lot of patience, but at about 10 months post-op I'm doing chest presses and incline pushups again. The pain is all gone, thankfully!

Take care of yourself Granny!

Joe

Jump to this post

The entire forum on Mayo Clinic Connect has become difficult for me to maneuver within. I have a hard time understanding who is saying what to who.
It seemed like your message, that was sent to me, was meant for someone else. You spoke about their "fusion," and also to me, when you spoke about my "liking your quote." I have never had a fusion.
Also, everyone uses a lot of abbreviations to medical terms. Hopefully everyone else understands the abbreviations used in these posts, I don't.
However, I believe you had a left Shoulder Replacement, and I do appreciate that comment because last surgery, it was mentioned that in the future, that may be in order. (Which scares me to death!)
Anyway, please know this response isn't entirely meant for you. And it may only be me that is having these issues with the forum.
Got to go take care of some chores. Have a great day!

REPLY
Profile picture for livininthestix @livininthestix

I am with you on the constant pain!! I have DDD and advanced arthrosis of the facets, a titanium plate in my neck. No fun at all. Acupuncture, hot tubs, cbd/thc creams and edibles help some what. I was on Gabapentin as well and stopped because I didn't like the side effects. I started LDN a month ago and that seems to help some with very few side effects for me. Low dose Naltrexone is worth checking into in my opinion. Hope this helps you some.

Jump to this post

REPLY
Profile picture for tresemae @tresemae

I gained 50lbs on it. But I still take it.

Jump to this post

@tresemae I’ve been on it 13 yrs and it has never made me gain any wt. I’m 75 now and do have an aggravating side effect on Lyrica - swelling in my feet and hands. Some srs have sl swollen face too. This side effect only affects seniors the paper insert says.

REPLY
Profile picture for heisenberg34 @heisenberg34

@heyjoe415 Thanks, Smokin' Joe. I am not interested in smoking dope. Gummies or edibles will likely be my choice. You are correct. sometimes being disconnected from reality may not be a bad thing. I am hoping to find a mix of THC and CBD that will give me a little pain relief without the altered reality. Hope you are doing well.

Jump to this post

@heisenberg34 a gummy of hemp thc and cbd helped me a lot through a painful year (pain gone with recent hip replacement). True my thinking was not as sharp but quality of life better. Used R&R and Gold Naturals.

REPLY
Profile picture for blueice @blueice

@heisenberg34 a gummy of hemp thc and cbd helped me a lot through a painful year (pain gone with recent hip replacement). True my thinking was not as sharp but quality of life better. Used R&R and Gold Naturals.

Jump to this post

@blueice Thanks. I have some lower dose THC gummies coming. Hope they help even if just a little bit.

REPLY

You sound like my sister and I am so sorry you have this host of issues.

My sister is older than you are by five years and I am older by two; her solution (and mine) is doing her exercises and stretching religiously. And I do mean: every single DAY.

My sister tells me her pain level in her back, hips, etc, as well as numbness in her legs increases if she skips even one day without exercising. Same with me, I cannot just "sit" for more than an hour. I also do not sit Upright, I always recline whenever possible, to keep blood flow and lymph fluids flowing easily.

I would avoid steroid injections. Steroids are more a short term, seldom use solution and not really good for joint spaces on an ongoing basis; especially for as young as you are. This was on my ortho's and her ortho's advice (two different super good docs who are not "surgery happy").

My sister won't do steroids either, and ops for alternating Aleve, aspirin, and Tylenol. For example Day 1: Aleve day; Day 2 Tylenol day, Day 3 Aspirin day; Day 4 Tylenol Day; Day 5 Aleve day and repeat. This is also what I do for my back, hip, neck, and hand pain (I have degenerative disc disease of the neck as well as arthritis in my knees, hips, shoulders, and hands.

I took Celebrex for quite some time (five or six years) until I figured out it was dropping my GFR (kidney filtration rate) so I stopped Celebrex (my GFR thankfully returned to normal - I was lucky) and began the alternating NSAID - non-NSAID routine per my orthopedic doc advice. That routine works well. I also do exercise and when I skip it, I know I skipped it and not in a good way.

Slipped disc. Depending on the amount of slippage and what it is affecting, surgery may or may not be a solution. My neck and my sister's lumbar both have slippage of discs. We are both doing a wait and see. Both our doctors also advise this, though at some point we probably WILL need surgery to fix those discs, if the pain becomes unmanageable.

My neck discs are "shot" (bad enough to need replacing) in five discs (we only have six!). Neck surgery will require I have three surgeries and neck disc surgeries are very dangerous for obvious reasons. I am rather a surgery proponent (have had knee and shoulder done and went well) and would not be opposed to surgery, but the doc says, "Let's see if we can keep the pain manageable - with exercise and the pain relievers for as long as possible", "then let's talk surgery, when you are unable to control or stand the pain...any longer".

My sister is scared to death of back surgery and absolutely does not want surgery, so she exercises every single day. It keeps her on the pickleball court - even though she is in pain.

Our docs have both told us: "IF the pain is so bad you can't keep moving then we will do surgery".

Bottom line (sorry this is so long): if you cannot possibly move due to pain in any joint in your body, and you have been doing all you can to move, but the pain makes it impossible: have surgery.

Without moving the human body simply dies: use it or lose it.

REPLY
Please sign in or register to post a reply.