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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@rwinney

Hi. The most confusing and frustrating part of SFN, for me, has been and continues to be the layers of the disease. Keeping in mind, each persons case may be different.

My neuropathy came in slow (almost 4 years ago) then fast and furious (over a year ago). It has brought pain, aching, stabbing, burning (internal and external), throbbing, tingling, pins, needles, zaps, sun burning, numbness, cramping, muscle weakness, muscle twitching, vibrations, spasms,..I could go on and don't mean to alarm anyone but it's the only way I can explain layers. Some layers I no longer have thanks to Lyrica, some have never left, some have gotten worse.

To answer your specific question...I can no longer drive but when I was trying to, I found ways such as only short distance, putting car in park while at red lights, using cruise control to free me legs/feet and driving with my left foot (little dangerous) as my right foot was worse. Proceed with caution!

This may not happen to you and I truly hope it does not. Remember we're all different.

Some basic steps to try for relief may be topicals, ice, heat, stretching, massage and rest. Although, I have found it's helpful to have the right balance of rest verses activity

Best of luck to you. Be well.
Rachel

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Replies to "Hi. The most confusing and frustrating part of SFN, for me, has been and continues to..."

@rwinney Rachel, if driving is important to you and you can afford the best, take a look at the digital hand controls at http://www.kempf-usa.com It's really pricey, but it helps me to feel in control of my disease. I drive to the swimming pool three days a week, I drive to physical therapy and other medical appointments. Twice I drove it to Minnesota for appointments at Mayo. The inside ring on the steering wheel of my little Prius C is my gas, and the knob on the right is my brake. I can press a small button the dashboard, and the system immediately converts to the usual gas and brake pedals.