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Radiation for breast cancer with Ehlers Danlos (Hypermobile/ Type 3)

Breast Cancer | Last Active: Jun 8 9:20am | Replies (5)
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@colleenyoung I currently don't have a doctor who could do this for me; I've been managing symptoms with what I learned when I was diagnosed years ago.

Thanks for tagging people. I'd love to hear positive experiences and any tips people might have as I begin radiation tomorrow morning!

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Replies to "@colleenyoung I currently don't have a doctor who could do this for me; I've been managing..."
Colleen Young, Connect Director | @colleenyoung | Jun 7 8:31pm

@susie757 and @cdammen, if you're not already, you may wish to follow the EDS blog by Mayo Clinic experts:
- Ehlers-Danlos Syndrome Blog https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome/tab/newsfeed/

The Ehlers-Danlos Society provides a service to help find EDS specialists See the “Healthcare Professionals Directory” here: https://www.ehlers-danlos.com/healthcare-professionals-directory/

Mayo Clinic's EDS clinic is listed there, along with many others across the US listed by state. Providers from other countries from around the world are also included.

Mayo Clinic accepts EDS patients at all 3 campus locations in AZ, FL and MN. People can self-refer for concerns related to EDS and/or hypermobility. A physician referral is not required. Geneticists are also available at all locations although appointments may be limited for a genetics consult in AZ and MN at this time.

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