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← Return to MAC treatment do or not do
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MAC & Bronchiectasis | Last Active: 3 hours ago | Replies (39)
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@equanimous Thank you for encouraging comments. I am doing ok without the big3 for now. I feel in my heart I made the right choice not to take the treatment! Best of life for you!
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@eespoor
I was persuaded to take the vig three. My care team misdiagnosed numbness in my feet as not antibiotics and I stayed on the antibiotics for another 25 days developing both ethambutol induced optic and peripheral neuropathy. Along the way abscesses became dominant so ethambutol wasn’t even working. I was fit and otherwise healthy before antibiotics so it didn’t work out well for me. I do airway clearance and am stable so far. My major problems are the vision loss and numbness in my feet and legs.