Should I see a Neurologist who specializes in PN?
I have PN due to Diabetes 2. I have a neurologist who prescribes med for pain and is sympathetic but does not specialize in PN. In your experience is it worth the time and trouble to seek a neurologist who specializes in PN? My foot pain seems to be getting worse and I am worried about progression. She has never said that it will progress but I have read that it will. Of course I am frightened about winding up in a wheelchair. My mobility now is limited and this week especially bad in the pain department. Please let me know your thoughts. Thank you.
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I had symptoms of DN in my chest and Lyrica/PreGabalin seems to helped with that.
If I were in your shoes I might see a podiatrist first.
Here is something that may help with the pain.
https://www.qutenzahcp.com/dpn/about
Hello @scain
So sorry about what you’re going through. Something you may or may not know, peripheral neuropathy due to diabetes is the most researched type of neuropathy because the cause is known and scan possibly be controlled by controlling your diabetes properly. You might really wish to look more with your PCP if your diabetes is quite under control. Also do some digging online into this. It’s the most widely researched type of PN.
Wishing you the best always. Take care and have a serene week,
gus
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1 ReactionThank you. I didn't realize that there was so much info available for diabetic peripheral neuropathy. I will definitely be doing a deep dive tonite on it. Again, this site is spectacular for generous individuals who are willing to share their knowledge and experience. This is invaluable to all of us and something that I am pretty sure from reading all your comments for a long time that we are not getting from either our primary doctors or specialist neurologists. Thank you again, gus.
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2 ReactionsPeripheral pain is due to nerves loosing their insulation , same as wiring loosing plastic coat.
Vitamin B12 makes new blood cells AND new nerve insulation. Most seniors are low B12 because we have less stomach acid. Acid removes B12 from food. Then of course most seniors eat way too little foods that contain B12 anyway ,that`s ANIMAL protein. Alcohol dulls the tips of millions of intestine and stomach villi, so there's less absorption. I take B12 in the form of METHYLCOBALAMIN. It works. A really good food source of B12 is plain old fashioned seafood, MUSSELS . Even better than liver.
I have nil nerve pain in my 83.5 yr old body. Go for it.
@johnbishop
Nerve pain is due to missing insulation MYELIN.
An animal protein diet provides plenty of B12.
B12 makes new blood cells AND new nerve insulation.
Taking METHYLCOBALAMIN is a short cut to fixing nerve pain. That's the medical name for B12.
@jamessaxo wow very impressive knowledge. I will check it out.
@scain As far as I know, all neurologist work with people who have neuropathy.
I have had Polyneuropathy for many years. Unfortunately, my nerves got damaged from an autoimmune disease I had 10 years ago. The disease is a rare form of Vasculitis. It inflamed my arteries so much that my nerves were not getting fed.
Do you know WHY you developed neuropathy? Many people don’t unless they have diabetes.
I believe knowing the reason for your condition, takes some of the stress off.
Despite the commercials, and ads promising a cure there is no cure…
People who are on this Mayo site will attest to the fact that they have spent lots of money on gadgets, and have been ripped off.
I choose to take an over the counter supplement, Alpha-Lipoic Acid. (ALA).
It absolutely helps me with pain. I take 600mg. twice a day. My neurologist suggested that I take it.
ALA is sold anywhere vitamins and supplements are sold.
Just be careful with the promises of a cure. Products that offer to just ease the pain are something to consider.
I wish you well.
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1 Reaction@jamessaxo hi James. The wearing off of the myelin sheath is just one way to acquire Polyneuropathy.
My dad had CIDP, and that’s what happened to him.
For someone like me and many others, Polyneuropathy can be caused by:
“There are other causes like, traumatic injuries, infections, metabolic conditions, exposure to toxins, and diabetes.”.(Mayo Clinic)
There is no cure only relief.
Susan
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1 ReactionReally happy to help any way I can. We’re all suffering from this invisible condition and we’re all in the same boat.
Take care and best wishes,
gus
@SusanEllen66
True. But generally people of very low B12 loose nerve insulation.