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Should I see a Neurologist who specializes in PN?

Neuropathy | Last Active: 5 hours ago | Replies (21)

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Profile picture for allegheny @allegheny

@johnjp WOW johnip, you took the words right out of my mouth. I have been searching for a neurologist who specializes in idiopathic PN, for 5 yrs, they just do not exist.My GP sort of agrees with me. My GP is in anew practice,now affiliated with Univ. of Florida health care, she is doing research on finding a neurologist who specializes in PN.. UF is a teaching hospital, therefore I am encouraged there may be a possiblity in finding somebody. I have not been to a neurologist in 4 yrs, all they want to do is up the gabapentin. NO NONO!! I am not in any pain just numbness, tingling and occasionaly thighs will burn.. I find that exercise and suppolements such as R Alpha Lipoic Acid. Bentofiamine, and Acytl help,I know spelling is incorrect. I am in vestibular PT now, trying to retrain my brain to walk better, do curbs, and trying to walk on uneven surfaces,grass, sand mulch, etc. I think at times it is working, hoping so. Good Luck and Mayo Connect is wonderful for new up to date info. One can take it or leave it and its free!!! Best Wishes

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Replies to "@johnjp WOW johnip, you took the words right out of my mouth. I have been searching..."

@allegheny love your attitude and helpful hints about dealing with this. Thank you for sharing and best of luck finding your new doctor.