Hi @yorkshirerose2016, by any chance have you been checked for SIBO? Also, I assume you've been tested to make sure the C-diff is gone (I hear it can persist long-term)?
I recently got a book by Izabella Wentz, called Finding and Treating the Root Cause of IBS. It's super detailed and maybe you'll find something helpful in there. She talks about LDN in there, too, by the way.

@yorkshirerose2016
Hello. First off I am sorry for what you are going through especially not getting answers you need.
So a few tests that GI office could order are: SIBO breath test, CSID breath test, HIDA test for gallbladder, stool test for EPI. Have you done any of these? You can quickly search the web for info on these tests/conditions. Some GI docs don’t think the breath tests are accurate but I personally think they are helpful. You do have to weigh out the cost benefits though.
If they’ve only done a CT scan of your gallbladder they wouldn’t know if it’s working properly without doing a HIDA test.
My GI docs had me work with their office’s dietitian who recommended the FODMAP diet. For a fiber supplement she has me using Sunfiber (find on Amazon) which is gentler than others.
It has been a journey for many years with IBS-M. But through the tests you may get more info and need to go on Xifaxin - a GI antibiotic. It helped me a lot.
I also am aware of a stress response in my gut and did do some counseling for past trauma. While I’m not sure it helped my gut issues, it was helpful in general.
Other methods to try are acupuncture, massage, heating pad, etc.
For me, prayer and offering my pain up has helped. I think I’ve become more compassionate to people’s pain that is not visible. Chronic pain takes a toll and finding someone going through similar things eases the suffering. I guess that’s part of the purpose of this forum.
I sure hope you get some answers! Keep us posted.