Hi,
My main issue is that from time to time I have bouts of temporary paralysis. They can be full body or limbs. The limbs play up in pairs with the predominant one being the arms from the shoulders down. Unable to move my arms when sitting with my fingers interlaced in my lap. I have to struggle up and go get my wife to pull my fingers apart, then good to go again. The worst I have experienced was full body from the neck down when waking up in the morning. I could not move for around 20 minutes, just lay there rolling my head left to right and back again trying to turn onto my side, nothing. I had an occasion when walking the lower body froze on the spot from the waist down mid stride. Nothing would persuede a muscle to move. It felt like I didn't own the legs below me.
I have had one occasion with speach difficulties, I couldn't speak, didn't have any concept of what words were, absolutely no idea. Truely lost for words!
I have been battling for over 13 years to get a diagnosis and it has not been until I figured it out with the help of AI that specialist have confirmed the diagnosis when asked point blank, is it FND. As I have autonomic polyneuropathy it has been hard to seperate the causes of various issues.
I'm not sure which part of me causes the problem but it feels like the message to the relevant muscle/muscles doesn't get through or isn't initiated from source. But I do find it is resolved when an appropiate signal does get sent and recieved. The problem becomes the duration between signals, does it get longer with age/time or can it fade and no longer be a factor. I guess time will tell.
Cheers