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Profile picture for Janell, Volunteer Mentor @jlharsh

Hi @alju My heart is hurting for yours as I let your words soak in. You have been facing scary symptoms for quite a while and I imagine finding out something concrete is hard to process.

I am tagging @japlok who may have helpful information to share. He created a discussion where you can review what he and others have been discussing about doctors and treatments…

-Mayo Clinic Discussion: Alzheimers care and treatments: Consult with Mayo Clinic?
https://connect.mayoclinic.org/discussion/alzheimers-care-treatments/
You mention likely amyloid buildup. Exactly what have you been told, and what is next? Do you have someone, family or friend you can process with?

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Replies to "Hi @alju My heart is hurting for yours as I let your words soak in. You..."

@jlharIh
I haven't been told very much. The doctor who ordered the blood tests that I saw one time and who is not right for me suggested a medication Donepezil . I read the side effects of that and also of a couple of others and they are scary. I am trying to find another doctor and hope it doesn't take too long. Unfortunately, my family is very small, consisting of one sister and one daughter, and are in different states. I have not told my daughter about this and am debating what to say to her. I would appreciate any suggestions and thank you for replying. I feel very alone right now .