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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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Kranton is a hospital?
Not really ok. Daylight hours I can deal with it. But night the neuropathy episodes are so difficult. Seems the numness in the feet are.just too much to bear until the morning brings the light. At 72 years...one deals with it and wishes only completion and integrity
Its a supplement! Google it! Only thing working for neuropathy! Tried them all ! Good luck
@mcgatt - I suffer from burning feet, so it never occurred to me that having numbness in your feet would keep you awake! May I ask why? I mean - isn't numbness the absence of feeling?
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1 ReactionHello @mcgatt, I would like to add my welcome to Connect along with the other members. I also have the numbness with my feet. I've had my small fiber peripheral neuropathy for over 20+ years (76 now). I don't think numbness is an absence of feeling but rather a different kind of feeling and just not pain, burning, etc.. You mentioned the numbness keeping you awake at night. Is it the pressure on your feet from the blankets or sheet?
Believe me the two sensations can co-exist. My neurologist explained it to me but I didn't understand even then.
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2 ReactionsNo its a supplement
@mcgatt you might want to read the post by @colleenyoung to learn more about Kratom and possible side effects.
https://connect.mayoclinic.org/discussion/intractable-pain-ip-doctors/?pg=1#comment-316645
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1 ReactionGood to know, thanks. I'm beginning Medicare in 2020 and Neuro said no way will they cover IVIG without a major fight. All so interesting. Time will tell.
You said you only have minor neuropathy in feet! I probably wouldn’t take anything! I have spinal stenosis and trust me, it’s more than that! Surgery did nothing! Gabapentin made me a zombie! Doctors even agreed they wouldn’t take it! Shots in spine didn’t help! Couldn’t walk 50 feet without sitting down! Severe neuropathy in feet ! Medical marijuana makes me couch bound! Have just started using Kratom! A man on spinal stenosis forum suggested it! It’s a plant! Only problems they have found with it have been combining it with drugs like opiates! It is good for depression, anxiety etc! It also motivates you to get off the couch! Know people that have been on it for years! No problems! Am 68 years old and could care less about getting hooked on it! Also, I don’t get high on it ! It makes you tolerate your pain! Maybe you should try it!
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