← Return to What would "components of Sjogren's" mean?

Discussion
intheorchard avatar

What would "components of Sjogren's" mean?

Autoimmune Diseases | Last Active: 1 hour ago | Replies (18)

Comment receiving replies
Profile picture for intheorchard @intheorchard

Thank you for the reply. My mom died of congestive heart failure so I must admit, my mind goes there. The doctors here seem content enough to do a chest x-ray (I've had two four years apart) and say everything looks fine. I am inclined to just accept that as I am too busy to be sick. But when I wake up gasping at night, I start to question. After 5 years of mentioning chest pain, my GP did finally order a ct chest scan. It came back with an enlarged ascending aorta to which she replied 'well it's not an aneurysm yet, we'll do an echo next year'. No mention of it again. Calcified granulomas and lymph nodes in the lungs to which she replied, 'everyone has those'. I noticed a 'calcified mass on the kidney' but since she did not mention that, I assumed it too is common. I do accept that my inclination to just accept that "it's nothing" and move on is contributing to the lack of diagnosis. But then I wind up on a discussion board whining and looking for answers :). I will look up Multiple Myeloma and see the symptoms--thank you. 🙂

Jump to this post


Replies to "Thank you for the reply. My mom died of congestive heart failure so I must admit,..."

@intheorchard sounds to me like you need a new doctor! One that listens and responds. Does your insurance require a referral to specialists? Mine does. When I can’t get answers from my doctor I find one that will at least try to find an answer! I got mine though I didn’t necessarily like them! Also, I don’t just assume something abnormal is ok because my doctor didn’t mention it. My T3 level was high for a year and I didn’t say anything…turns out my doctor missed it! We have to be our best advocate!

@intheorchard granulomas and enlarged lymph nodes that show up on a CT scan (that they’re not worried about being malignant) could be autoimmune in nature - that’s what popped up on my husband’s chest scan, and we worried sick until we got the call from the pulmonologist …. he has sarcoidosis. He’s been on methotrexate for the last 6 months. Sarcoidosis can cause chest pain.