Dani, I’m sorry you have EF. I developed it four years ago. My symptoms began with Morphea and progressed to EF confirmed by muscle biopsy. The skin burning and sensitivity is miserable. Along with EF came several other autoimmune diseases including rheumatoid arthritis. EF affected my GI tract, heart rhythm, and the skin changes. I was on hydroxychloroquine first, then prednisone for two years, methotrexate injections. Then to hydroxychloroquine and mycophenolate. They helped but are no longer effective. Unfortunately higher doses caused my immune system to go so low I’ve had pneumonia, shingles, frequent styes in the last year. Not sure what next. Going through some testing to see what’s going on due to mobility, balance issues and brain fog. I wish you the best and hope for all of us affected by autoimmune conditions.