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Kris Mikkalson avatar

Anyone with Plasma Cell Leukemia or family?

Blood Cancers & Disorders | Last Active: May 23 3:14pm | Replies (37)
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Profile picture for lisa47 @lisa47

I was just diagnosed with primary plasma cell leukemia on 3/30/26 at Mayo was being seen elsewhere for low back and rib pain for a couple months. Started treatment and looking for others to connect with.

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Replies to "I was just diagnosed with primary plasma cell leukemia on 3/30/26 at Mayo was being seen..."
Lori, Volunteer Mentor | @loribmt | May 22 12:05pm

Hi @lisa47 Welcome to Connect. You popped into the perfect discussion to meet up with other members who have also have experience with PpCL. You may have seen the replies by @abby5 @knikriverstudios @19lesterk @krismikkalson.
Do you have any specific questions for these members? What type of treatment have you started?

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knikriverstudios | @knikriverstudios | May 23 3:14pm

@lisa47
Hi I have Primary Plasma Cell Leukemia .
Jim /Alaska
One in 3 million you are also. I was diagnosed April 28 2025.
30 weeks CyBOR D
I’m off chemo since March. Taking a break from side effects .

Let me know if I can help
you with any knowledge I have . Stay Strong .

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