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Becky, Volunteer Mentor avatar

CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: 3 days ago | Replies (444)

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Profile picture for Becky, Volunteer Mentor @becsbuddy

@ebjj4health Chemotherapy can be very difficult on the body and may not work for the lesions. But, if you and your doctor want to pursue the chemo, then the doc can fight the insurance company .
Are you back to your normal life, yet? Try to do as much as you are able!

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Replies to "@ebjj4health Chemotherapy can be very difficult on the body and may not work for the lesions...."

@becsbuddy I am not back at all to normal lifestyle. I felt fine until 3 weeks after being on prednisone. At that point I started having back pain which has progressed to sternum pain, abdominal swelling and pain, all of which is worse at night with night sweats. I have had lots of testing and nothing else shows up. I did have a positive TB test at the time Clippers was diagnosed but told it was Laten. ID wanted a second test but I had already started steroids and that test was negative. I either ran or walked almost everyday prior to Clippers, it is a struggle to just walk. I don’t sleep well due to the pain and sweats at night.