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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@johnbishop

Hi Andrea @monce1189, Welcome to Connect. I'm glad you found Connect and I'm hoping some other members will be able to provide some information for you. I had not heard of kappa light chain disease but did find some information on the Genetic and Rare Diseases Information Center that may give you more information about it.

Light chain deposition disease -- https://rarediseases.info.nih.gov/diseases/6906/light-chain-deposition-disease

I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion where other members have posted about kappa light chain test numbers.

> Groups > Blood Cancers & Disorders > Current diagnosis is Amyloidosis and multiple myeloma
-- https://connect.mayoclinic.org/discussion/what-a-shocker/

How soon is your upcoming appointment with the hematologist? I hope you are able to come back and let us know what you find out.

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Replies to "Hi Andrea @monce1189, Welcome to Connect. I'm glad you found Connect and I'm hoping some other..."

Hi @johnbishop thank you I have been searching everywhere to get some insight becuase it seems that alot of people including myself have not heard of it. Thank you so much for your input and help, my referral and authorization was just put in on the first so I am hoping I will see my hemotologist in the next week or two hopefully sooner than later becuase I feel so crummy and exhausted.😣 thank you tons 😊