Hi Ashley - I was only diagnosed 2 weeks ago - and only joined this forum a few days ago 🙂 I am honestly heartbroken to hear that you have been diagnosed with this at such a young age. I am in my early 60's and don't fuss about the underlying cause because my Neurologist said it's quite common in older people.

You said you don't want to take any drugs, and that makes me wonder how you deal with the pain. I finally went to my doctor because the pain had started to wake me up in the middle of the night (every night) and I could not get back to sleep until the pain meds I kept on my bedside table kicked in; and that doesn't even mention the daytime pain - which at times is all-consuming. Perhaps you are not there yet?