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Today is 6 weeks post Prostate removal surgery
Prostate Cancer | Last Active: 15 hours ago | Replies (26)Comment receiving replies
I am 7 mo post RARP. Incontinence reduced to minor stress incontinence. ED still funky. Erections mostly fine, but no orgasm. Tinkering with the med combo (cialis, viagra, and lately something called cabergoline). In many ways, feel like a 12 year old waiting on the wetdream. Highly anticipated and we keep trying. Am able to get aroused and hard enough for penetration. Can feel the sensation building, but just can't get over the hump. Spouse has been very patient/supportive, so my fragile mental state is usually in a good place. Grateful for the otherwise great health, and try not to let the pecker dictate the attitude. But as we know, God blessed us with a penis and a brain, but only enough blood to operate one at a time.
Replies to "I am 7 mo post RARP. Incontinence reduced to minor stress incontinence. ED still funky. Erections..."
@folmajt " God blessed us with a penis and a brain, but only enough blood to operate one at a time." Wow-made me laugh because it's so true.
I'm no expert, but I did a lot of research on penile therapy pre-surgery, seeing what various centers and experts recommend. I'm now four weeks post surgery and having some response and yes, I can get over the top for the last couple of weeks, which is crazy early.
On my own, I started daily pump therapy (pump up, deflate, repeat 5x) just to just get some blood flow to try and minimize atrophy of the fibrous tissues. That part definitely does not feel sexual. I follow up with some vibration therapy, which early studies indicate may have benefit for triggering those nerves. Big studies are underway now at several centers. So data is not in on this approach.
Just speaking from personal experience... If you have some nerve preservation or they have healed enough, I will confirm that the vibration does trigger a sexual sensation as long as you have some sort of visual stimuli going (critical). Vibration is a very different sensation and its definitely not enough to get me over the top. But, it does seem to prime things.
I was in a support group session last night where a sexual function nurse talked at length that worry and apprehension over performance will always win out over an erection. Meaning, apprehension and frustration can be a barrier. He didn't offer any advice on how to overcome that though.
I don't have deep pockets, so instead of the FDA approved Viberect unit at $400, I bought a cheaper knockoff unit from Aliexpress for $80. Always a risk because there is no warranty. https://www.aliexpress.us/item/3256810154832615.html
Not saying to rush out and get one. I think it helps with the build-up process...but it isn't enough to seal the deal. Just saying it has been helpful for me because it does take longer now to cross the finish line.
Good luck and hang in there!
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@folmajt
How long did it take to get down to minor stress incontinence? Seems like during the day the only time I pee is with stress like getting up out of chair. Then rush to toilet and maybe pee some. But weird thing is at night I will wake up and feel the normal, I need to pee and have a strong stream. Also, same if I am laying on couch watching TV, I get the feeling, got to go! Sitting, walking and moving around- nothing. Just a few dribbles. Also, am drinking a lot of water.