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Hello. I’m new to this sight. I’m a 75 year old female diagnosed with ET JAK2 this past month. Platelets at 920. I’ve been very active as USTA tennis player with team taking 3rd in National this February. I was battling fatigue thru out the tournament attributing it to age. Ha…now I know. Started Hydroxyurea 500 daily and had terrible headaches, dizziness, brain fog constipation …also strange sensations in feet After one week Dr cut me back to every other day until I adjust. I drink tons of water which helps with the detox and early morning headaches. I will work with my naturopath to support detoxification pathways. I have not been able to play sports as I’m worried I could hurt myself. I do walk and garden which brings me joy. Moving and getting out in nature is so good for all of us. Best of luck to everyone and glad for this site to connect to others having this life changing diagnosis.

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Replies to "Hello. I’m new to this sight. I’m a 75 year old female diagnosed with ET JAK2..."

@susi1950

Welcome to the club nobody wants to join, susi1950!

We are all different, but it is possible that your fatigue, headaches, dizziness, tingling feet and brain fog are "gifts" of ET itself. Having too many platelets impedes blood circulation, especially in our head and extremities.

I hope that for you, as HU brings down your platelet count, it will relieve these symptoms. That was my experience.

Constipation you can attribute to HU!

Drinking lots of water and staying as active as possible keep your heart pumping and your blood flowing! After your years on the tennis court, you must have great cardiovascular health! That gives you a real advantage .

Did your oncologist also suggest a daily low-dose aspirin?