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Jen, Alumna Mentor avatar

Feeling at my wits end with Chronic Pain and Fibromyalgia

Fibromyalgia | Last Active: 16 hours ago | Replies (362)

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@fmcfs I feel so damaged. I’m so upset . You made something very clear that I couldn’t manage to figure out or research on my own. If you look at my phone under notes, and texts created for different subjects so I could remember everything. I still get scared from cognitive things I should know and struggle to remember or have to learn how to do again. Throughout this fibromyalgia journey I had 2 different insurances. I had many many doctors. Of course neither of those were specifically or close to being trained on fibromyalgia meds. NOT ONE DOCTOR EVER cared to know how long I was on these meds and just kept prescribing them. Never suggesting I could or should get off. And I was only taken off Cymbalta because I REQUESTED IT and was given instructions for getting off in 2 weeks. Thank you for your enlightenment it means a lot. It’s not just brain fog, it’s these drugs too being administered without a care for the patients brain. Will I ever regain what I’ve lost? I feel like my IQ was cut in half.

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Replies to "@fmcfs I feel so damaged. I’m so upset . You made something very clear that I..."

@jeannesf1 I’m so sorry it happened! You are not alone. Fibromyalgia is such an individual syndrome, and each medication affects people differently. There is still a good chance to recover if you take care of yourself. Counseling, good exercise program like Tai Chi, and or yoga, eating well (no gluten, sugar, minimal carbs like bread, pasta, potatoes) and vitamins like D and B Complex. It’s important to find a good sleep med and avoid stress as much as possible. I moved to the beach because of Fibromyalgia. TIME will tell. But the things I mentioned will give you a fighting chance. Sending love.