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HCM-ers: Introduce yourself or just say hi
Hypertrophic Cardiomyopathy (HCM) | Last Active: Oct 1 4:13pm | Replies (1259)Comment receiving replies
Hello. I was recently diagnosed with HCM this March. After almost 20 years of having increasing shortness of breath, coronary artery stents in 2008, open heart surgery in 2016. A fib 2 years ago, resulting in an ablation.
I was referred to a pulmonary doctor for shortness of breath, and after 5 years with him, finally got diagnosed with HCM.
Now going through testing and a genetic study. Hoping that I get approved for the meds. Not looking forward to any more surgery.
HCM has essentially limited my physical activities.
Replies to "Hello. I was recently diagnosed with HCM this March. After almost 20 years of having increasing..."
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Hello @eaglenut97, and welcome to Mayo Clinic Connect.
Wow! You have been through a lot and had more than your share of heart issues. And now this too...but it is good to know what you've been dealing with and take it from there.
I'm glad you found this online group and shared your story, and I hope you have had a chance to read some of the many stories from others just like you.
Here is a link for more information on this unpleasant condition:
https://www.mayoclinic.org/diseases-conditions/hypertrophic-cardiomyopathy/symptoms-causes/syc-20350198
And here's another to an organization outside of the Mayo Clinic with more information:
https://www.4hcm.org
You mention you are going through more testing, including genetic tests, has anyone else in your family been diagnosed with HCM?
Definitely shortness of breath is a very common symptom of HCM, along with many other symptoms that mimic many other heart conditions, making it difficult to diagnose, which can take many years...as in your case.
Are you otherwise healthy? Being healthy makes going through this easier.
When do you see your doctor next?