← Return to Feeling at my wits end with Chronic Pain and Fibromyalgia

Discussion
Jen, Alumna Mentor avatar

Feeling at my wits end with Chronic Pain and Fibromyalgia

Fibromyalgia | Last Active: 10 hours ago | Replies (356)

Comment receiving replies
Profile picture for fmcfs @fmcfs

Gluten sensitivity is linked to autoimmune disorders like Celiac. Fibromyalgia is NOT an autoimmune syndrome, so going GF ( which I do) helps a little because it reduces inflammation. However, it would NOT cure it because there is no cure. If she really had fibromyalgia, she wouldn’t be symptom-free.

Jump to this post


Replies to "Gluten sensitivity is linked to autoimmune disorders like Celiac. Fibromyalgia is NOT an autoimmune syndrome, so..."

@fmcfs & @abd Fibromyalgia symptoms CAN be drastically reduced by diet and lifestyle changes, but a person may not be cured. In fact, it is like "going into remission" with other diseases and disorders.

Going back to the old lifestyle, or changes like stress and the addition of other conditions or illnesses can cause the symptoms to come back.

I have had fibromyalgia for over 40 years. Removing gluten from my diet led to a huge reduction in my symptoms, to the point where I often felt "normal". BUT when I got a chronic lung infection, and needed serious long-term antibiotic therapy, every symptom roared back, worse than ever before. It took 2 years of pain management therapy to get back to where I was before the infection. Now, I am having a flare of RA symptoms, an increase in osteo-arthritic and seasonal allergies, and the symptoms are worse again. Even my rheumatologist uses my fibro symptoms as a gauge for how well my RA drugs are working.

So really, fibro is a condition that can "wax and wane" depending on other things going on, medication, stress, even weather.

PLEASE don't conclude that because symptoms are gone, there was a misdiagnosis.