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Chronic Myeloid Leukemia now Myelofibrosis: Anyone had both?
Blood Cancers & Disorders | Last Active: May 22 8:02pm | Replies (13)Comment receiving replies
Hi @winniegirl It sounds like your meeting with a myelofibrosis specialist was really beneficial for getting the treatment you need with your combination of having MF and CML. Jakafi is a very common medication for MF. If you’d like to check out discussions with other members who are also taking Jakafi for MF, here is a link for you. Feel free to tap into any conversation!
https://connect.mayoclinic.org/search/
I have to ask about your CML. Did that just go into remission with no treatment whatsoever? What does your hematologist think of this?
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@loribmt Hi, I am on Dasatinib 100 mg. I started taking this August 5th 2025 so in 9 months I achieved remission, but the white count and platelets never went down and are now increasing. My hematologist wants to start me on 20 2 times a day, but from what I have read I think I should start on a lower dose, my hematologist says he is a specialist too, I have the option to switch hematologists one time but am hesitant to switch right now, the Myelofibrosis specialist I saw was very informative, and companionate, I am just frightened and don’t know what to do.