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Prednisone withdrawal and Unlikely Additional Symptoms
Polymyalgia Rheumatica (PMR) | Last Active: 2 hours ago | Replies (70)Comment receiving replies
I have had pmr for 5 years and my last 2 CRP tests have been normal yet I am in agony and I was down to 3mgs a day and I quit taking it 4 days ago as it makes no difference to my pain level. I am at my wits end with the pain and the fatigue. I have been trying to taper of a number of drugs as up until January I was taking 640 pills ever 4 weeks. I got my pill amount to 540 pills every 4 weeks since January. I have coronary artery disease and have had a serious heart attack and have 5 stents in my heart to add to the mix.. I am very short of breath so I am starting to think it will never end.Unfortunately I have no faith or trust in my doctor for numerous reasons and am on a registry to get a new doctor which is over three years long and I might be dead by then.
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Hello @wendybfrompgbc, So sorry to hear that you are 5 years into your PMR without and still having agonizing pain. Hoping you can get a new doctor or rheumatologist that will work with you on a treatment plan. While you wait for others to respond, I thought you might like to scan through other discussions and comments from members who have posted about having normal CRP test but still having pain. Here's a search link that lists the discussions and comments - https://connect.mayoclinic.org/search/.
You mentioned being on a lot of different pills. Have you ever had a review of all of the medications you are taking to see if there may be some interactions between the different medications? Also wondering if some of the medications are alternatives to help the prednisone?