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Breast cancer patient also with osteoporosis: AI, Prolia and Reclast

Posted by bunnymoon @bunnymoon, Apr 4, 2024

Im new to this site. Please forgive if this topic addressed previously. I am to start an aromatase inhibitor (letrozole) but I have osteoporosis. Plan is for me to start every six months Prolia shots. Of note I’m 58, postmeno, was on HRT for menopause symptoms and osteoporosis. The HRT didn’t help my bone density.

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soggybones | @soggybones | 11 hours ago
In reply to @triciaot "@soggybones I had osteoporosis before cancer. My ob/gym tried to get me to take alendronate for..." + (show)
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@soggybones I had osteoporosis before cancer. My ob/gym tried to get me to take alendronate for years but I was, stupidly, resistant. I had finally decided to try it, had stomach irritation from Fosamax, and was getting ready to schedule a Reclast infusion when the DCIS was found. I waited about 9 months after surgery to try the infusion. I’ve had 3 annual ones so far. Will see the endo in July. Although 3 infusions is often recommended then a med vacation, I believe because I’m still within the first 5 years after cancer they will continue to recommend yearly infusions. I don’t like taking meds of any kind, but if it will protect me from bone mets in case I have a recurrence, I’m all for it.
I am also on 5 mg tamoxifen. I was thinking I could maybe do just 3 years of tam with the latest research saying its protective. But because my sister had breast cancer I think the 5 years is what they want me to do. Will be going in for scans of all kinds on the 27th/28th.

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@triciaot Wishing you good results on your scans! This can all be so scary!

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cmb93 | @cmb93 | 3 minutes ago
In reply to @soggybones "@sherrilei Did you have osteoporosis before going on an AI? I have osteoporosis now and I'm..." + (show)
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@sherrilei Did you have osteoporosis before going on an AI? I have osteoporosis now and I'm trying HRT for my osteoporosis and menopause symptoms. I'm already at a 20% risk of breast cancer and I'm told a 4 year course of HRT won't increase my risk. I'm just wondering what women with osteoporosis do if they end up developing estrogen + breast cancer. The AI's really weaken your bones.

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@soggybones I hear you! I listened to a podcast interviewing Dr. Belinda Beck out of Australia. Her Onero program sounds like a solid researched based plan for safely building back bone density. I’m going for an eval with a local PT this week. The Onero website has a map of locations across the US that offer this program. You can see more about it from others here:https://connect.mayoclinic.org/discussion/onero-program-for-bone-building/. Blessings to you as we get stronger through sharing resources! You are not alone!

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