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Chronic Myeloid Leukemia now Myelofibrosis: Anyone had both?

Blood Cancers & Disorders | Last Active: May 22 8:02pm | Replies (13)
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@loribmt He just said you are likely to live 10 years. I then saw a Myelofibrosis specialist and she wanted to put me in a trial but they did not accept me because of the CML. She suggested Jakafi and my hematologist is putting me on it, he issued the prescription for prior approval and said to give it about a week. My CML is now in remission.

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Replies to "@loribmt He just said you are likely to live 10 years. I then saw a Myelofibrosis..."
Lori, Volunteer Mentor | @loribmt | May 19 8:33am

Hi @winniegirl It sounds like your meeting with a myelofibrosis specialist was really beneficial for getting the treatment you need with your combination of having MF and CML. Jakafi is a very common medication for MF. If you’d like to check out discussions with other members who are also taking Jakafi for MF, here is a link for you. Feel free to tap into any conversation!
https://connect.mayoclinic.org/search/
I have to ask about your CML. Did that just go into remission with no treatment whatsoever? What does your hematologist think of this?

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