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Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (13)
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Replies to "@stonewheel I appreciate the update. Sounds like everything is going well for you. Four months on..."
@dadcue
I think I remember you mentioning that you had no sensory loss after your TN surgery?
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@dadcue
“I never saw my inflammation markers that low before and my ESR and CRP are still very low. I read stuff that said inflammation markers aren't reliable on IL-6 inhibitors like Kevzara . I think ESR and CRP being low is a good sign Kevzara is working and if they aren't low it may indicate Kevzara isn't working for some reason.”
Yes! That’s me.
Vit D, my rheumatologist started me on 50,000IU, once per week. The first dose wiped me out for the whole next day. My PCP said he’d just come from a conference about D and the conclusion was 5,000IU daily was more tolerable and was just as effective. So, I spoke with my rheumatologist about it and she said yes, to do that.
I’m going to back off a bit, now that summer is here.
Two days without D and I think my scalp is feeling better. I could be wishful thinking, but I’ll take that!