I’m 18 mo. in to ET diagnosis and take HU 5 days a week with platelets returning to normal. What I’d like to do is stop the HU and cope with symptoms less invasively. I have leg aches constantly with bone pain. I am so tired out by HU. I’d like my life back but quitting also scares me! I had very high platelets following Covid that caused pain in my feet that was excruciating without constant Ibuprophen. My life has changed so much and I hate being drug dependent-on HU and daily Aspirin and yet still ache. I’d also like to hear about others who handle ET naturally. Is there really an alternative that works without drugs? I’m female, 74 and also depend on daily Levothyroxine due to a complete thyroidectomy. Managing my drug dependency is all I can do at times.
But I do manage and I am grateful to connect on this forum with others dealing with similar days.