Connect
← Return to One year PO and now it seems I'm Stage 4 :-(
Discussion
One year PO and now it seems I'm Stage 4 :-(
Prostate Cancer | Last Active: 25 minutes ago | Replies (31)Comment receiving replies
@im62at2024
That PSMA pet was probably recent enough. You are right I didn’t go back to the top. I usually do go back to the top and check, but I didn’t in your case, sorry.
You definitely need to get that elbow treated as soon as possible. You don’t want to wait any longer if you can have it stopped. I know people have had to have surgery and removal of bone after that happened. Hopefully, they caught it early enough.
If your PSA doesn’t drop back that another scan is one answer. I don’t see you mentioned getting salvage radiation. That really would be essential if nothing shows up on that pet scan.
Replies to "@im62at2024 That PSMA pet was probably recent enough. You are right I didn’t go back to..."
Connect
@jeffmarc
That's ok no need to apologize I'm just so very thankful you folks are here to help us.
I've not had any radiation yet my surgeon was super confident that he got it all, all the margins and everything around the prostate tested negative. My last biopsy in February 2025 showed several 3+4=7 and one 4+4=8 Gleason's I believe is correct. I will say this I want to get it out of there ASAP, kill it and hopefully stop the pain in that area it's bearable but no fun. Right now 5 sessions of SBRP is supposed to start next Wednesday pending approval. They said the cancer in the marrow is a bit more than 2cm in length and filling up all the entire 2cm area of marrow in the humerus bone. He said the outer bone structure around the affected area still looks really good or we would be looking at operating and stabilizing the bone.
I'm actually starting a two week regimen of an antibiotic today for a bad sinus infection. I contacted the cancer institute I'm using to see if it would interfere with the radiation and they have already called back and said no it'll be fine to be on the antibiotic during the treatment. They also gave me a direct number so I'll get someone immediately via phone for any questions. I left a message on a general number but someone routed to it to the correct person.
I'm in the US and on a UHC Medicare Advantage plan. My out of pocket max this year is $4200. I spent 22 years with a Class 1 railroad as a Journeyman Machinist but forced onto medical retirement by the railroad and the railroad retirement board/RRB due to Ménière's disease and a failed 3 level lumbar fusion in 2009. I'm 63 years old, normal retirement for a railroader is 30 years service and 60 years old.