I’m so sorry, it sounds like you’ve been through a lot. I’ve already discussed my recent Rituxan experience with you, but I was wondering whether your doctor has ever mentioned if IVIg is an option for your condition? I quickly googled and Dr Google says it does treat scleroderma as adjunct therapy or for those who cannot tolerate chemotherapy-based treatment.

I tried one round of IVIg in the hospital for my condition (dermatomyositis/overlap) and saw results within a week. I did unfortunately develop a blood clot in the brain a month later (I have a clotting condition and signed a waiver so I was fully aware it could happen), so we’re now in the process of getting pre-auth for a lower risk type of therapy called SCIg. So I’ll be on Methotrexate, Rituxan, SCIg, and the dreaded Medrol (after the last taper which landed me in the hospital, I won’t be tapering again any time soon!!)

Best of luck 🙂