@dadcue
Hi Mike.
Thanks for asking.
I’ve been on Kevzara for 4 months. Prednisone is down to 4.5mg/day, this week. SED & CRP staying low. All others are good or acceptable as to be expected…

Tender scalp increased so we (Rheumatologist & I) decided to have an ultrasound done. The results were negative for GCA.

Because Kevzara can result in a false negative we decided that a temporal biopsy would be more definitive. The biopsy also reported negative for GCA.

We don’t know why I have the tender scalp pain.
I’m wondering if too much of the supplement,
5,800IU of D3 per day could be causing it. I’ve read that it can.
With the warm weather, I am outside a lot, so I should be able to reduce it by half, or more. Coincidentally, I plan to message my rheumatologist today for her advice, since she prescribed the D3. I’m thinking that she will do blood tests June 2, (as scheduled) and then adjust if required.

Other than the tender scalp, the pain, stiffness and tingling in my hands and fingers increased over the past month. They feel better yesterday and today after not using them much and I expect them to return to normal. I’ve had EMG/NCS testing and that’s not it. Also, I had wrist injections last week to see if carpal tunnel was causing the pain, stiffness and tingling, but that’s not it either. Rheumatologist recommended Voltaren but it did not help and felt strange. Strange enough to stop it after a couple of days.
Ice water soaking of my hands daily for 10 minutes in the evening before bedtime seems to help.

My Prednisone taper plan has stayed on pace, and I hope to be off by the end of October. I’m at 4.5mg/day now.
Sometimes I wonder if I could taper more rapidly, as the classical PMR spots (hips, back, neck and shoulders) have not bothered me since December, 6 months ago, shortly after starting Prednisone. Better safe than sorry?
I don’t want to flare, but I don’t want to prolong delaying my adrenal restart.
I should be in “the zone” now, or soon.

I hope that was a complete answer without being too lengthy while staying on thread topic (sort of). Thanks again for asking. I always appreciate your feedback Mike and I hope you’re doing well.