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Urologist said I could stop Orgovyx. Your thoughts?
Prostate Cancer | Last Active: 13 minutes ago | Replies (84)Comment receiving replies
Is your cancer localized or do you have metastasis? I'm scheduled to go off Orgovyx at 18 months, but I was Gleason 7 with cancer in the gland and in two adjacent lymph nodes. I want to be off ADT before any remaining cancer becomes castrate-resistant, which seems to happen around or after the two year mark. I also had 44 IMRT treatments.
Replies to "Is your cancer localized or do you have metastasis? I'm scheduled to go off Orgovyx at..."
@jime51
I quit after one year of Orgovyx in 2022. I had Gleason 8, 42 IMRT sessions, and had a lot of joint pain due to the ADT. I had pc spread to my seminal vesicles and a suspected site on the outside of the colon. My PSA has hovered around 0.1 after quitting.
Because of my concern about distant metastasis I take a daily dose of Turkey tail mushroom tea or capsules.
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@jime51
Gleason 9 diagnosed in August 2024. Cancer was localized to prostate, no metastasis. Urologist said it was okay to stop Orgovyx in April 2026, approximately 20 months after being on it. 28 sessions of IMRT completed in April 2025. Last week's blood test results: PSA less than 0.04, testosterone 55.