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What tests and scans were ordered before you had your salvage RT ?
Prostate Cancer | Last Active: 1 day ago | Replies (29)Comment receiving replies
@pamperme
Thanks Timmy so much for finding time to give me additional details and an update about your treatment 💗 My husband is in very similar situation, one iffy margin, Decipher 1 (the highest that exists) and his pathology after RP was updated from 4+3 to 4+5 😔. Cribriform and IDC on top of it all... Our "doctor team" is not proactive (even though my husband is treated in a big cancer center of excellence in the Bay Area, CA ) so we have to fight for every single step taken. His uPSA climbed from less than 0.014 post op to 0.136 now (9 mos post op) and they do not see it as "urgent" which blows my mind !!! I feel like I live in some parallel universe where high risk BCR is "nothing to worry about" (??) Every single study shows that treatment should start at 0.25 the latest and his doubling time is less than a month ! We finally managed to get orders for some tests and some we did on our own. PSMA was scheduled for June 8th which would possibly push my husbands PSA in 0.5 territory 😵 so we had to call around and make app. in different hospital that had a sooner opening : (((. All in all, thanks again for all the details since we have to basically make my husband's sRT plan and protocol by ourselves : (((.
Sending healing vibes your way : )) !!! You are half way done and are in very competent and caring hands 👍 - just little bit more and you will be done with this all : )))) ! Wishing you all the best <3
Replies to "@pamperme Thanks Timmy so much for finding time to give me additional details and an update..."
@surftohealth88 I had RP surgery 11/11/24 and my Gleason also went from 4+3 to 4+5. PSA was at 0.02 after 8 months, and 0.04 after 11 months. Even though it was still low we decided to move ahead with radiation because it was trending the wrong direction. I had a single Lupron shot in October 2-25 and 39 radiation sessions from 12/8/25 to 2/4/26. As of 2/18 my PSA was <0.01. My only side effects were fatigue from the radiation and hot flashes from the Lupron. I'm getting my energy back but the hot flashes continue. I'm feeling good about the process so far. My next appointment with radiation oncology is in early July.
@surftohealth88
The likelihood of the psma showing up something at <.2 is very small. With the margins as questionable and the rising of psa from <.02 for 2years and going to .15 they suggested radiation. A psma test was done because they wanted to make sure nothing showed up outside the prostate vicinity dice if it had spread outside the area to be irradiated they would take a different course of action. Once they did this they put me on ADT which stops the cancer from growing. They started radiation 4 months after being put on ADT. They did give me the option of waiting for a higher PSA up to .5 or to go onto ADT and use it manage it. But I wanted to try for a cute using radiation. With such a high decipher score the chances of curing it with radiation based on decipher about 1/3. Too me a chance for a cure is better than none.
They are not sure how much doubling time means at these low levels but there are places that use PSA of .1 for a reoccurrence with the aggressiveness of the cancer you subscribe. They have to do the psma test before going onto ADT.
Best wishes
Timmy
Timmy
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@surftohealth88 As soon as that PSMA is done and read ( negative!) get him on the Orgovyx/Nubeqa(?)
ASAP. You’ll be able to put the brakes on right away.
Phil