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Anyone have chronic lymphocytic leukemia (CLL)?
Blood Cancers & Disorders | Last Active: Jun 22 7:21am | Replies (368)Comment receiving replies
@loriskt I was diagnosed 5 years ago. My numbers have steadily climbed and then will stall for a while. I am so exhausted it is unbelievable to me. I find it so frustrating that doctors continue to say it is not from CLL. A few years down the road I think that research will show that is not correct.
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@joycelen
Yes, it is very difficult to accept that this level of fatigue is going to stay with you the rest of your life. Every day, I feel exactly like I used to feel when I drank too much (for me it was only two drinks, and I only drank when I went out on the weekends, and was much younger), and the hangover lasted two days.
You know, I think that just the thousands of people who have CLL stating that they have horrible fatigue is research enough. That's what I am going by. If we wait until research catches up, many of us won't be around to benefit.