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Anyone have chronic lymphocytic leukemia (CLL)?
Blood Cancers & Disorders | Last Active: 5 days ago | Replies (368)Comment receiving replies
@loriskt 13q mutated.....best markers you can have. Nearly 40% of mutated patients never need treatment. Not so fortunate for those of us who are unmutated. It's like 2 completely different diseases. I've interacted with a few of Dr
Sharman's patients on Healthunlocked. They all love seeing him and the Williamette clinic is evidently easy access.
Replies to "@loriskt 13q mutated.....best markers you can have. Nearly 40% of mutated patients never need treatment. Not..."
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@tomatack
Yes, I am very thankful for those markers. By the way, I contacted the CLL Specialist's office at OHSU in Portland, Oregon and was told that unless Kaiser gives a referral, the initial consult would be $600-$900, and she said Kaiser doesn't tend to give referrals. I'm sure it is because Kaiser considers their oncologists to be top of the line and there is no need to go elsewhere. And they may be top of the line, but I should be able to see a specialist if I want to. This might be what makes me leave Kaiser. I don't usually say things like this, but I got so upset, I said "Well, I may as well just die then!" and hung up. It just gets so frustrating! Then I felt horrible for burdening the poor woman with my anger. Oh boy.
I assume other people read these posts - does anyone know which insurance plan for old people like me (72) is a good one? I've been with Kaiser for over 20 years, so I have no idea how it compares to other companies.