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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 6 days ago | Replies (5972)

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@johnbishop

Hi @lynnaustin, I agree with Chris's @artscaping approach to neuropathy. I have dealt with numb feet for over 20 years and when it seemed to be getting worse in 2016 I started worring which didn't help me. I had avoided having tests to diagnose the PN because years earlier when I asked the doctor what can they do to fix it if they determine it's nerve damage. The doctor said nothing and I just avoided thinking about it until it started getting worse. After my diagnosis of idiopathic small fiber peripheral neuropathy mostly likely genetic the neurologist told me there are no topicals or medications that can help with the numbness and I didn't have any pain or burning. I was depressed until I started doing my own research and learning as much as I can about neuropathy.

One of the first things I did was join the Minnesota Neuropathy Association when looking for a local support group. At one of their meetings I heard some words of wisdom from an 80+ year old neurologist still doing research at the University of Minnesota. He said if you live long enough you will get neuropathy because nerves eventually die. So I started looking for alternative ways of helping with my particular numbness only neuropathy. You can read about how I found the supplements I taked in my story in an earlier post on Connect here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985

Bottom line that I have learned from all my research is that there is no cure for neuropathy but you can find treatments for the symptoms and live a more normal life. My great hope for the future is stem cell therapy for neuropathy but it's just not there yet. As promising as stem cell research is for a lot of things, I don't believe there has been any successful treatments for neuropathy. There is another discussion that you might find interesting and a warning from the FDA.

Groups > Neuropathy > Stem Cell Therapy for Neuropathy
https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/

There are also some warnings about all the stem cell clinics popping up.

Consumer Updates > FDA Warns About Stem Cell Therapies
https://www.fda.gov/forconsumers/consumerupdates/ucm286155.htm

There are a lot of things that I can no longer do, some because I'm a lot older and some due to my health conditions. Like Chris and others I try to take each day one at a time the best I can and find something that gives me joy each day. I do like taking photos from the window next to my computer ☺

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Replies to "Hi @lynnaustin, I agree with Chris's @artscaping approach to neuropathy. I have dealt with numb feet..."

Hi John , I’m having trouble joining Protocol (not sure of name ). I’d like a list of supplements . Do you have one? Maybe you know website address? If so please send it to me. Thanks

Nice photos ! Relaxing I’m sure.
Thanks for your suggestions and guidance for all of us dealing with various forms of chronic pain. You really are an inspiration with your positive attitude and always researching for others for treatment that might help.
Keep up the great work- to you and the other moderators as well.