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Urologist said I could stop Orgovyx. Your thoughts?
Prostate Cancer | Last Active: 1 day ago | Replies (89)Comment receiving replies
@jeffmarc Hi Jeff, Gleason 9. Prostate removal and salvage radiation in 2020. Slight PSA steady rise to .053. PSMA detected some cancer hot spots. Current PSA 0.014 (essentially zero - the lowest reading lab test can show). I’m approaching a show-down with my medical oncologist after one year on Orgovyx + Nubeqa. What would be my best argument to my doctor to take a drug holiday after one year instead of going the two years he seems to be stuck on. Any supportive studies in addition to Libertas? Thanks.
Replies to "@jeffmarc Hi Jeff, Gleason 9. Prostate removal and salvage radiation in 2020. Slight PSA steady rise..."
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@lsk1000
After one year with such a low PSA, it may make sense, But the longer-term of ADT is recommended for a reason.
Rick Davis talked about this type of decision in the recent ancan.org Weekly advanced prostate cancer meeting. Rick, who started ancan.org, talked about his friend who had a Gleason nine and decided that after a year of ADT he would stop because it Interfered with his running a big company. He encouraged the guy not to do it, But he did it anyway. Within a few years, he had to have chemo, it had spread considerably. He died not long after. Just something to think about. Weigh how aggressive your case is, what aggressive things were found. Did you get a decipher test to find out your likelihood of a reoccurrence?.
Lots of things to think about for a Gleason nine.