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What tests and scans were ordered before you had your salvage RT ?
Prostate Cancer | Last Active: 1 day ago | Replies (29)Comment receiving replies
I wish you the best for salvage radiation to eradicate your pc forever too. I am 5 months into ADT with Orgovyx and have completed 15 sessions of radiation. I have no effects from the radiation except being tired which could be the adt. My PSA only reached .15 but with the questionable margins and they did a decipher test (they should have done after RP) it was .92 which is extremely high for a Gleason 7 (3 4). Both URMC and Sloane Kettering recommended radiation. Sloane offered 5 sessions of SBRT which is new for this but is becoming more used. It would be nice to only going for 5 sessions.
My adt and radiation end on June 18. The adt biggest problem is handling my emotional side. I also have brain fog, weakness and tired. I hope I do not have a reoccurrence having to go back on it. It definitely changes me mentally. Good luck and best wishes
Timmy
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@pamperme
Thanks Timmy so much for finding time to give me additional details and an update about your treatment 💗 My husband is in very similar situation, one iffy margin, Decipher 1 (the highest that exists) and his pathology after RP was updated from 4+3 to 4+5 😔. Cribriform and IDC on top of it all... Our "doctor team" is not proactive (even though my husband is treated in a big cancer center of excellence in the Bay Area, CA ) so we have to fight for every single step taken. His uPSA climbed from less than 0.014 post op to 0.136 now (9 mos post op) and they do not see it as "urgent" which blows my mind !!! I feel like I live in some parallel universe where high risk BCR is "nothing to worry about" (??) Every single study shows that treatment should start at 0.25 the latest and his doubling time is less than a month ! We finally managed to get orders for some tests and some we did on our own. PSMA was scheduled for June 8th which would possibly push my husbands PSA in 0.5 territory 😵 so we had to call around and make app. in different hospital that had a sooner opening : (((. All in all, thanks again for all the details since we have to basically make my husband's sRT plan and protocol by ourselves : (((.
Sending healing vibes your way : )) !!! You are half way done and are in very competent and caring hands 👍 - just little bit more and you will be done with this all : )))) ! Wishing you all the best <3