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Profile picture for janchan @janchan

Before I was diagnosed with lymphedema, I got scolded several times by doctors who thought my swelling was due to me not taking my Lasix. After I was diagnosed with lymphedema, I learned that swelling due to lymphedema doesn't respond well to Lasix. That said, I still take Lasix, but usually find I do well without it. You might want to ask your doctor if you should have a vein mapping done, if it hasn't been done already. That might help your doctor make a decision regarding you taking Lasix. I've found that Lymphedema not always understood and that there are conflicting ideas about how to take care of it. Personally, because I have both lymphedema and venous insufficiency, I recently decided to see a vascular surgeon who also is interested in compression therapy. Only one hospital in Kansas City that I know of performs the new microsurgeries done to help lymphedema. (Mayo Clinic offers these types of procedures, so they would be a good place to learn more.) I hope that my new vascular surgeon will be able to either give me orders to have a microsurgery at that other hospital, or perhaps can do a surgery on my veins that may be preventing the flow of lymph fluids to my torso. Re: compression socks. I only use the light compression and find they make my legs feel better. I strongly advise you to ask your doctor about the compression and type of socks you should be wearing.

Kind regards,
Jnaet

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Replies to "Before I was diagnosed with lymphedema, I got scolded several times by doctors who thought my..."

@janchan
Followup to initial post. I finally got to meet the doctor I hoped would help me with my lymphedema treatment, if only to oversee it and make sure the PT was doing their job. Unfortunately, he told me he doesn't deal with lymphedema and didn't think my veins were the problem. It was very disappointing because his bio said a part of his practice ws working with lymphedema. Seems to be really hard finding a doctor or even a good PT who are knowledgeable and willing to help patients with lymphedema. I'll just have to keep trying to find someone. If anyone knows about qualified, honest PTs in the Overland Park, KS area, I'd love to hear from you. Thank and bless all of you.