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Second opinion on cancer grading?

Bladder Cancer | Last Active: May 25 1:37pm | Replies (15)

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Profile picture for wire4can @wire4can

Uteter was full of cancer. So scarring prevention is too little too late. Took six months before first biopsy showed what is. By then was full. The stent did not do anything at this point. Regardless of cancer I still need to live my life and stent is really not providing much other than allow tissues to escape into my bladder which can cause seeding, or easier access gor docs as doc had stated. Have already seen tissue in urine. Doc said my type cancer is rare in its location especially since high grade. I am being seen at large cancer center known for this type of cancer but for bladder. Not alot if research about upper uro track per uro-oncologist. I do not like risks with stent infection, incontinence, seeding...I have vascular stents which require blood thinners and had been off two months and went back on this week after doc said to restart them, because that risk is great for event as well. A massive infection can cause vascular stenting to fail. Has been quite the quandry regarding all this. Doc needs to communicate. If continues like this will get clearance to go to Mayo in Az. I cannot wait another 6 months for treatment options. Stent was supposed to be out in days per doc not weeks.

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Replies to "Uteter was full of cancer. So scarring prevention is too little too late. Took six months..."

@wire4can It certainly sounds like you are destined for a referral for more timely medical care for an aggressive cancer. I know the Urology teams are busy as we hear that at Mayo too, but delay in treatment is decreasing possibility of positive results. You must be so frustrated. Our medical system can be difficult to navigate and I fear that is will keep getting worse. What is the status of your kidney if the ureter was totally blocked? My husband went through stents and nephrostomy tubes to keep urine flowing during his battle with a scaarred ureter.