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Any Briviact experiences to share?

Epilepsy & Seizures | Last Active: Jul 2 5:51am | Replies (161)

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@louissc
Hi Louis!
I'm sorry to hear you had a seizure, even a mild one. But it's truly wonderful that you're not feeling discouraged and you're still celebrating the good results you're having on Briviact. That's a great attitude to have!
About two weeks ago, I'd had a mild seizure myself, most likely due to antibiotics I'd been taking combined with poor sleep from pain. Knowing it was tied to a specific situation, I didn't let it discourage or demotivate me. I'm happy to say I'm past it now and seizure-free again.
Your late lunch could definitely have been a trigger. That's happened to me too in the past, which is why I always try my best to stick to regular meal times. And when that's not possible, I make sure to eat something in between.
Out of curiosity, have you been keeping a daily diary? Jotting down how you're feeling every day, even on days when all's well and there are no symptoms or seizures, can be incredibly helpful — especially when starting a new AED. That's actually how I came to understand my own seizure triggers much better.
Have a nice weekend!
Chris

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Replies to "@louissc Hi Louis! I'm sorry to hear you had a seizure, even a mild one. But..."

@santosha

Hi Chris,

Yes I do keep a diary with my caregiver noting down the time and length of seizure. I realized excessively salty food can be a trigger, thus I stuck to naturally sweet steamed fish when possible.

It is also important to have regular meal hours like you said. Irregular ones can be a trigger. I’m glad you are as ever so optimistic and refused to let any situation discourage you! I sincerely hope all will go well for you. Meanwhile have a good weekend!

Cheers,
Louis