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Any Briviact experiences to share?

Epilepsy & Seizures | Last Active: 1 hour ago | Replies (154)
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Hi everyone,

Today (16 May) is my 1st day on 50mg Briviact both day and night. For the past week since last Sat (9May) I was on 1 doze of 50mg at night.

During the last week, nothing major happened.

The only major incident was the seizure yesterday evening while brushing in the bathroom. However, it’s a brief one according to my caregiver (≈15sec of lying on floor), still conscious. To get back on my feet took a bit longer (maybe a minute longer) than my previously almost daily seizure. During those, I could recover almost immediately.

Am I happy with the progress? Yes. The seizure yesterday might be due to my late lunch (7.5 hours after breakfast). Today, I’m fine after the increased dosage. Except for a bit more itching felt at both upper arms past few days, I’m all good.

Cheers,
Louis

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Replies to "Hi everyone, Today (16 May) is my 1st day on 50mg Briviact both day and night...."
Chris Gautier, Volunteer Mentor | @santosha | May 16 8:23am

@louissc
Hi Louis!
I'm sorry to hear you had a seizure, even a mild one. But it's truly wonderful that you're not feeling discouraged and you're still celebrating the good results you're having on Briviact. That's a great attitude to have!
About two weeks ago, I'd had a mild seizure myself, most likely due to antibiotics I'd been taking combined with poor sleep from pain. Knowing it was tied to a specific situation, I didn't let it discourage or demotivate me. I'm happy to say I'm past it now and seizure-free again.
Your late lunch could definitely have been a trigger. That's happened to me too in the past, which is why I always try my best to stick to regular meal times. And when that's not possible, I make sure to eat something in between.
Out of curiosity, have you been keeping a daily diary? Jotting down how you're feeling every day, even on days when all's well and there are no symptoms or seizures, can be incredibly helpful — especially when starting a new AED. That's actually how I came to understand my own seizure triggers much better.
Have a nice weekend!
Chris

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