Hi @patty1962 I’m going to tag member @lisanell, who originally posted this discussion about the trial that you’re involved with! Reading some of her followup replies I think she’s waiting for confirmation of acceptance in another trial.

But wow, thank you for posting your information about being involved in this JNJ88549968 Trial drug at U of Penn Hospital! I’d love to read your story! You should be able to post a photo or file. There’s a link right that shows up right under the window when click on the blue reply button. There is a delay in being able to do that for new members but you should be past that period. And yes, you can post links to attachments as well!
How were you accepted? Did you or your doctor have to file the application or request to be included?
You mentioned being in the hospital for the 2nd step up dose. How long is your stay each time?

Hah, yes, m’dear. I did make through some pretty dramatic medical adventures! Thank you! ☺️ That’s why it’s so important to never give up hope and keep right on pushing forward! It never ceases to amaze me what our bodies can endure and overcome! I’m 7 years post all of that excitement and living my best 2nd life. So I truly wish you all the best with this journey!
How many step up doses will you receive? As in, how long does this trial last?